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Morinville family planning trip to assist daughter with rare medical condition

Morinville – In her mother’s arms, her parents and siblings gathered around her on the living room sofa for a family photo, 18-month old Blakelee Mayr looks like any other child at first glance. But she is not. Blakelee was born with Cornelia de Lange Syndrome (CdLS), a genetic disorder that affects one in 10,000 to 50,000 newborns, depending on the information source, and causes “a range of physical, cognitive and medical challenges” according to CdLS World, the International Federation of CdLS Support Organizations. […]